Daily Archives: May 15, 2015

WeAreTSC

I don’t reblog very often (in fact, I don’t believe I’ve ever reblogged a post by someone else). But this is so much more important than movies or science fiction or baseball. Please take a moment to read charmarie221’s humbling post. Life… is a hell of a thing.

Rambling Is Therapeutic

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This month there is a big focus on Tuberous Sclerosis Complex (TSC) with the culmination being Global Awareness Day today, May 15th, and a campaign to hear all of the stories at #IAMTSC.

I don’t know that I’ve ever consciously thought of the disease as a Global Issue, although obviously it is as the numbers reveal that it affects people everywhere.  I’ve thought of it in the National sense because we’ve lived in different states and have had different experiences with doctors and clinics and support groups and schools, all of which have had varying experiences with the condition.  I receive publications and information from the National Tuberous Sclerosis Alliance.  And I’ve thought of it locally when we’ve taken part in the Step Forward To Cure TSC which is a fundraiser in the form of a Walk in Frisco (as well as many other cities nationwide) each year…

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